Independent patient guide. Not affiliated with any hospital, clinic or university. Educational only, not medical advice.

MALS patient survey: how long did it take you to get a diagnosis?

Published studies on median arcuate ligament syndrome (MALS) come from hospitals. Almost nothing is known from the patient side: how many years it takes to get a diagnosis, how many doctors people see, which tests they have and how they feel after treatment. This anonymous survey collects exactly that, and the results are shown on this page for everyone.

About the survey

  • It takes about 3 minutes: multiple-choice questions only.
  • It is anonymous. We do not ask for your name, e-mail or any free text, and we do not store your IP address.
  • Results appear below as group percentages once at least 30 people have answered, and then update automatically.
  • You can answer for yourself, or as a parent or carer of a child or teenager with MALS.
  • This is not medical advice and not a clinical study. If you have worrying symptoms, contact your doctor.

Take the survey

1. Who is answering?
2. Where do you live?
3. Sex of the person with MALS (optional)
4. Age when symptoms started
5. Time from first symptoms to the MALS diagnosis (or until now, if not diagnosed)
6. How many doctors did you see about these symptoms before MALS was suggested?
7. Main symptoms (choose all that apply)
8. Tests you had (choose all that apply)
9. Other conditions you have been diagnosed with (choose all that apply) (optional)
10. Treatment for MALS so far
11. If you had surgery: how long ago? (optional)
12. If you had surgery: how are your symptoms now compared with before? (optional)
13. If you had surgery: did symptoms come back after first improving? (optional)
Consent

Results so far

0 of 30 answers so far. To protect privacy and avoid misleading percentages, results are published once at least 30 people have answered. Then they update automatically.

How we use the answers

  • Only multiple-choice answers and the date are stored, in our own database. Nothing is shared with or sold to anyone.
  • Results are shown only as totals, never as individual answers, and only when enough people have answered.
  • We may summarize the results in our guides, for example in how MALS is diagnosed and surgery outcomes, always marked as survey data from visitors.
  • See our privacy policy for details.

MALS Compass is an independent educational website, not a medical provider, and is not affiliated with any hospital, clinic or university. This page is educational information and does not replace advice from your own doctor. For any question about your health, please contact your doctor or an official healthcare institution.

MALS Compass